Rose is only eight and did a great job recording with Bill Leverty from the band FireHouse. All of the download proceeds from iTunes, Amazon, CD Baby, etc. will be donated directly to the Cystic Fibrosis Foundation, in memory of Rose’s cousin, Camillia, who passed away from the disease last year. Cammy was only 21. Rose also secured a sponsor to match 100% of the donations, so every time you spend the 0.99, someone else does as well
Emmy went without oxygen at birth. The result was a traumatic brain injury that has left her with many challenges. But we fight for her every day and we hope you will join us.
On Feb. 12, 2011, Emerson Grace (AKA Emmy) came into the world by crash C-section. She was not moving or breathing, she was silent and she had no color. . .but she had a faint heartbeat, and that was something. After 6 long weeks in the NICU, she came home. We weren't given much information, other than we'd have to "wait and see". Unfortunately, it was evident from the very beginning that she hadn't escaped unscathed.
Now almost a year later, we still aren't certain of her future, but we know where she has been and how far she's come. Although a baby's brain is very resilient, she has suffered significant setbacks. But she is working very hard to progress and has captured our hearts and the hearts of many others along the way.
Emmy keeps a crazy schedule (for an 11 month old). . .vision and occupational therapies on Mondays, physical therapy on Tuesdays, CME (another form of PT) on Wednesdays, feeding therapy on Thursdays and developmental therapy on Fridays. She also has a team of medical specialists. In addition to her Pediatrician, she sees a Pulmonologist, two Neurologists, Gastroenterologist, Otolaryngologist, Opthamologist, Audiologist and Urologist. And there will be others I imagine.
In her first year of life, she's endured 6 hospital stays at 3 different hospitals totaling 10 weeks inpatient. Her current diagnoses include: HIE, Epilepsy, CVI, Dysphagia, Failure to Thrive (FTT) and GERD. We anticipate she'll be diagnosed with CP.
Despite all of this, we have hope for her future and will do anything for her. She has already come a long way. . .not on the typical milestone chart. . .but in her own special way.
As tough as it is to ask, we need your help to give her even more hope and possibilities for the future. There are many therapies and treatments available that are costly and not covered by insurance. Ironically (or not), these are the therapies that offer the most hope and promise. We are already paying out of pocket for some of her most productive therapy. We believe she is ready for more. So our appeal to you is for her. Please donate what you can to help us help our precious little girl develop to her full potential and have the best quality of life possible.
Click here for the FundRazr page to donate via PayPal. You can use your PayPal account or a credit card. If you feel more comfortable sending a check, send a message and I'll provide our address.
Stay tuned to this page for updates on Emmy's therapies and progress.
We thank you.